Aside

Autumn … Season of mists and mellow fruitfulness.

Definitely misty, but also wet, windy and a bit chilly.  Soon I may have to start building fires to warm us up (ah I miss the days of central heating!!!).  This week the electric blankets have been dusted off and are rather lovely 🙂

So – healthwise things have been bumbling along ok.  I have a minor op due in a few weeks and my feet/legs are getting very very painful.  At times I can’t put any weight on my right leg and I’m seriously considering a walking stick (except for the fact that I don’t feel old enough to use it).  

With better health I’m working more, which is good in a financial sense, but very tiring.  I don’t seem to have enough hours in the day and I’ve ended up doing more than I can really cope with.  That just results in exhaustion again and I can see the slippery slope looming ahead of me.  Still, it’s nice to have some money in my pocket for a change!

Dogwalking time now, where’s my wellies and heavy raincoat?! (roll on spring)

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It’s been a while!

A lot’s happened, illness, more illness, misdiagnosis, major op, recovery.  Too tired to post about it today though.

Managed to get myself a bit of work, 4-5 hrs a week.  Did 2 hours on Monday and haven’t been able to do anything since!  Housework is piling up, seriously behind in my studies, but I do feel a bit better today.  Then again I’m due to work again tomorrow, so that’ll be the weekend wiped out!  Ho hum.

Today’s focus though – a campaign by the inspirational Sue Marsh to get ESA changed.  Yesterday’s #ESAendgame was amazing, and she’s got more things planned.  If you haven’t already done so, check out her blog:  http://diaryofabenefitscrounger.blogspot.co.uk/

The other blog I check regularly is http://johnnyvoid.wordpress.com/

Even if you’re not disabled or claiming benefits, the way this government is treating those who do is just unbelievably cruel.  Whilst I don’t doubt there are some who ‘play the system’, not every claimant is doing so – there are many, many people who genuinely need financial help.   Like many, I live in fear of losing the little that I get – I work part time on a low income because I just can’t work more than that.  No employer in his right mind would employ me, I’d be off sick within a week (that’s being a realist, not being defeatist).  If two hours of physical work leaves me wrecked for 2 days, one full 40hr week would nearly kill me!  I haven’t tried to claim ESA, from what I’ve seen online there’s not a hope of getting it and the stress of going through that process just doesn’t seem worth it.

Anyway, that’s all for now – will go and make a coffee, then see if I can do a little housework to stop the place looking such a mess.

Time

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It flies by far too quickly and yet I seem to achieve so little sometimes.  Days when I can get up and do stuff .. days when all I can do is slump on the sofa and keep thinking I should be doing stuff.

 

It’s been a tiring week …

 

In fact it’s been a horrible week …

 

Clearing up after the kitchen ceiling collapsed.  Clearing up after the builder pulled the remaining dodgy bits down.  Clearing up after the builder replaced the ceiling.  Clearing up after the builder came back to decorate.  The kitchen is one of those rooms that can’t be left until I’m feeling a bit better – it just has to be cleaned.  And plaster/plaster dust takes bloody ages to clear up.  So I’m tired now, the exhaustion sparing only my fingers – the rest of me is pulled as hard by gravity as the kitchen ceiling was.  I can’t get up to make a drink.  I can’t get up to find the tv remote (why are they always just out of reach).  I can’t even get up to go upstairs to bed.  I just … can’t …

 

How do you describe that exhaustion to someone who’s never experienced it?

Living with ME

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Something that will feature in this blog is the illness ME … known by many names and nicknames: ME is an acronym for Myalgic Encephalopathy, also called Chronic Fatigue Syndrome (CFS) and referred to by many doctors as CFS/ME.  When I first heard of it in the 80s it was called Yuppy Flu and sounded like people just being lazy.  God how wrong was that assumption!

I’ll write more later/tomorrow/whenever I can … I’m supposed to be studying at the moment but I appear to be perfecting my skills in prevarication 😉

Hello!

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Welcome to my new blog.  This is my place to talk about things that interest or bug me.  I’m not here to be contentious or argumentative – just saying it how I see it.   If you feel the urge to comment, please remember that my opinion is just as important as yours – healthy discussion is fine, but blatant trolling won’t be tolerated and I’ll just delete your comment.